Navigate Between Individual Posts

Simply click on one of the underlined links and it will take you to your desired blog post.

What Is Multiple Sclerosis?

My Diagnosis – Before

Being Diagnosed

How I Feel About Multiple Sclerosis

Positive Thinking

Numbness in MS

Living with an Invisible Illness

Being a “Fighter”

Knowing Your Limit

My Experience With Fatigue

Sometimes I Forget That I Have a Chronic Illness

Telling People Face to Face that I have MS

MS and Normality

When MS Gets the Upper Hand

Cognitive Defects

Guess who’s back?

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Mo Scéal – Before My Diagnosis

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The most prominent thing I remember over the past few years was always being tired. No matter how much sleep I got, no matter how I tried to relax; I would always struggle with lack of energy. Everything from yawning, lack of concentration, focus levels practically depleted and no enthusiasm whatsoever. To be honest, I never really thought that hard about it. I just thought I was lazy!

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The first time I remember feeling weird (this is the only word that aptly describes what you feel when relapsing with MS!) symptoms was in June of 2012. At the time, I had no idea that or if it was anything to do with Multiple Sclerosis. I’m not going to go into details about these symptoms yet, I’ll be saving that excitement for a separate blog! Anywho, the whole right side of my body went numb. Yes, ALL of my right side and yes; NUMB. This lasted a little over 6 weeks. I visited the ER with hopes of someone telling me what it was. The doctor there said that he was “puzzled” and thought that maybe it was “viral”. Good job, Doc. Good job.

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In December of 2012 I had my first experience with optic neuritis. This is a condition where inflammation of the optic nerve occurs and it causes a complete or partial loss of vision. Luckily enough, I only had partial loss of vision for about 4 weeks in my left eye. Can you say “annoying”? As if thinking I was going blind was bad enough, in the first 2 weeks of January 2013 I got what is known as “spasticity”. This was by far the toughest relapse I have experienced to date.

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I know what you’re thinking “wow, has she got a good memory or what?!” 😉 But, stop, you flatter me!

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So, on the 15th of January I was admitted to hospital. Suffering from severe muscle spasms on the right side of my body, I would spasm every 15 minutes. Whenever I would change posture, another spasm would “activate”. Let’s just say that it was not very pleasant. Long story short, they took blood tests, did a lumber puncture, and I had 3-4 MRI’s taken, EEG’s and ECG’s, the lot! Eventually, I was put on a 3 day dose of steroids and was released on the 21st of January 2013.

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On the 7th of February 2013 I was officially diagnosed with Relapsing-Remitting MS.

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My next blog will focus on my diagnosis and how I felt, acted, thought etc.

What is Multiple Sclerosis?

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You can search the internet for days and look for the definition of MS. Trust me, I’ve been there! Looking at so many different explanations it only confused me more. So, let me try to dumb it down for those of us who are not studying medicine!

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Multiple sclerosis or MS is a chronic disease that affects the brain and spinal cord; these are two components of the central nervous system.  What is a Chronic Illness you say? It is a long-lasting, long duration condition. Chronic diseases can be controlled, but, unfortunately there is no cure, as of yet (let’s stay positive!). Anywho! Because of the affect that MS has on the brain and spinal cord a lot of people have difficulties, such as, impaired or loss of:

–           muscle control

–          vision

–          balance

–          sensation (numbness, tingling, burning, itching etc.)

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Want to know the worst part? Our own immune system is the thing causing all of the damage to our nerves in the brain and spinal cord! As a result of this, Multiple Sclerosis is known and assumed to be an autoimmune disease.

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Are you still with me? You can do it, keep going!

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Now, an autoimmune disease is basically where your body’s immune system (which is usually our protector) targets and destroys foreign substances in your body (like bacteria and such). For those of us lucky enough to have MS (yeah..), this so-called “protector” makes a silly mistake and attacks our good/normal tissue in the brain and spinal cord.

Now, remember how I was talking about the symptoms above? This next part will explain how people get these weird symptoms.

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So, let’s talk about the central nervous system (CNS), shall we? This is made up of nerves, these nerves act like the systems messengers. For example, your brain tells your hand to grasp the handle of your cup of tea, so, you do just that. These nerves are surrounded by a type of fatty substance called myelin. This little stuff helps to protect said nerves and helps deliver the various messages to parts of our body. From A to B; the brain to parts of the body. Like text messages or emails! These little messages control muscle movements like walking, talking etc.

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Because of this, the myelin breaks down and/or becomes scarred. This distorts or even blocks the flow of messages, which results in the many symptoms of MS. Sounds fun, aye? Many people explain MS like a faulty electrical flex on a kettle, or like a faulty wire.  The nerve can be compared to an electrical cable; the axon, or nerve fibre that transmits the nerve impulse or message, is like the copper wire; and the myelin sheath is like the insulation around the wire. If the insulating flex breaks, it exposes the wires underneath making them more vulnerable to damage.

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I hope that I helped shed some light on the way Multiple Sclerosis works on the human body!